Emotional Support When You Have MS (article)
Everyone's experience with multiple sclerosis (MS) is unique, but the need for emotional support is universal. Among the options to find this support are the medical professionals who care about you, therapists, friends, family members, and groups of MS support.Support Groups
Self-help groups are an excellent source to deal with the trauma of being diagnosed chronic disease, a disease for life, and learn ways to deal with the challenges of day-to-day living with MS, says Rosalind dog, Ph.D., vice president of professional Resource Center of the National Assembly sclerosis multiple (NMSS).
When new infections are diagnosed with MS, they often withdraw and become isolated. Dr dog to join self-help groups and talk with others who have MS can help you feel less alone.
Self-help groups are also an excellent source of information about what can be done when you are dealing with a disease as unpredictable, such as multiple sclerosis, she adds. Most people find it extremely useful to share with others who are going through what they are going through.
Meet some self-help groups in person, and some telephone interview, and some meet online. Choose what you want and what works best for you, says the dog. To join a group online or over the phone removes this issue to get to the meetings, and some people like the anonymity of the behind-the-scenes interaction.
Contact through classroom and group activities
Support groups are not the only option is to find a contact and camaraderie.
When he was diagnosed Janneke van Beusekom, 58-year-old, a licensed clinical social worker in Lancaster, Pennsylvania, with MS for more than 30 years ago, there were not many support groups. Therefore it joined the swim group for people who suffer from MS instead.
"At 24, I was the youngest there," he recalls. One day, one of the men in the group brought old daughter 10 years to swim the group.
"It was wonderful to play with this little girl," says Van Beusekom. "He told me that there is life after MS, and that no matter what happened, I might be able to work and get married and have children. That gave me hope."
Related: dealing with the emotions of living with MS
Van Beusekom did not get married and have a daughter. In 1991, she decided to leave the position of the teaching of economics at the University, and earned a master's degree in social work so that she could help others who suffer from chronic diseases. Now, she works with patients with cancer and other diseases, knowing closely how important emotional support they provide is.
Aimee Heckel (50 years) from Santa Cruz, California, who was diagnosed with MS in 1998, and formed contacts through the registry in two categories of physical education to adapt at her local community college.
"Because every student in grades adjustment is struggling with something, we have the opportunity to support each other and enjoy being part of a social group where they are accepting our capabilities, rather than pitied," says Heckel.
Other ways to increase your mood
A host of other activities that can help you feel better emotionally:
volunteer. Van Beusekom volunteers and was with the NMSS in Lancaster for more than 20 years. Over the past three years, she's been involved with MSFriends program, which offers one-on-one support.
"Emotional support to others with MS to provide for me is to win the case," she says. "Not only I enjoy meeting new people, but also re-charge the batteries of my country."
Exercise. Exercise has many health benefits of physical and mental health, including improving mood. When you exercise, your body releases endorphins, which can help you feel less fatigued and more positive. Everyone with MS can tailor the exercise of their abilities, which can change over time, say the dog.
talk. "It's important to stand up for yourself and tell people - whether doctors, friends, your partner, or co-workers - what you need and want them," says Van Beusekom.
Most people are willing to help, but they are not mind readers. The more specific you are about your own needs, the best people to be able to provide this physical or emotional support, she says.
A pair Van Beusekom, and Alan, have had the largest provider of emotional support as they talk to him openly and honestly about their fears and concerns, she says.
Relaxation exercise. Van Beusekom also uses meditation. "I have been exposed to Transcendental Meditation in college and do it again, and that was very useful and it runs in my life," she says.
People who suffer from MS report less depression and higher quality of life when meditation once a week at least, according to a study published in 2014 in behavioral neurology.
Be in the know. Some people find as much as you know about the MS disease and its effects, the better they are able to deal with the emotions that come with the inability to predict.
"I would like to know, but not everyone wants to know everything," says Van Beusekom. If knowledge makes you feel enabled, stay current on MS advances online and through MS colleagues in the self-help groups.
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